Believe it or not, a man diagnosed with an incurable disease discovered 20 years later that the diagnosis was incorrect. Of course, he is thanking his stars that he is not dying of a fatal illness, but there’s more. Believing that he was a victim of the dreaded Huntington’s Disease, he made many life altering changes that are irreversible.
The man, identified by authorities as Mr. C, lived for decades waiting for the hostile personality changes, early dementia and complete loss of muscle control caused by Huntington’s disease. His family also lived in fear of passing the mutation on to their children.
After his first diagnosis, Mr. C’s wife terminated a pregnancy and his daughter terminated two pregnancies under the false assumption that they were saving future generations from the notoriously devastating disease.
Mr. C, 51, has filed a complaint against the Lothian National Health Service Board in Edinburgh because the local hospital failed to retest him for 18 years after a definitive test for Huntington’s disease came out in 1993.
“I hope there is no one else in the same position,” said Jim Martin, the Scottish Public Services ombudsman who oversaw the investigation into the complaint.

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